This post is for anyone who thinks us Stanis' are couch potatoes!
When we last talked,Taylor had somehow lost his tube, ended up in the ER and thankfully got another (smaller) one in. So that was around May 8th... what have we been up to? Not couching it, oh no... we have been BUSY!

Mother's Day Breakfast
Taylor had three visits with our surgeon friend, who was able to put his regular sized tube back in after only two visits and in less than a week! HURRAY, he rocks so much! Go Dr Brennan!
On the 15th we had our usual visit from the nurse that is in charge of Taylor's home care. She and I don't always see eye to eye, and this time she came with an agenda. She decided that she would cut our hours by 2 hours a day. While I agree that Taylor is getting well enough that we don't need as much care, one of the purposes of his care was to provide him with care while I work. This can be pretty complicated to explain, but as a child with a G-tube and other complications, he does not generally qualify for regular means of child care. Consequently, Katie Becket (a program that funds Taylor's Medicaid Eligibility etc) is in place to help find care for kids like Taylor. This day was very frustrating.
After Taylor's last tube change appointment, I decided to call the Ped's office becaue Livi's cold was not only not better, it was getting worse. Both the kids started getting runny noses around the same time T's tube came out. While Taylor's sort of resolved, Livi's developed into a bad cough.

Turns out she had an infection in both ears! Bring on the pink stuff!!! If you aren't familiar with this yet, and you are a parent... this is your future!
Anyway, so we went on with life and antibiotics...


If you look closely at this one, you will see the poor drippy noses that we've been wiping!



So on Saturday the 17th, we loaded up the car and set out to hit the rummage sales HARD! I love these sales... you can find so many good deals, and it gets us out of the house. And no one cares if the kids cry, laugh, or make a mess! We found a neighborhood where there were over 30 homes having sales. It was AWESOME! We walked and walked and then...

we ate. We were exhausted, but had a super fun time.

So the noses started to clear up, and on Thursday the 22nd, we were scheduled to have Taylor's Botox redone. Jon took the day off to come with me, unfortunately... for the doctor... Taylor's PT thought that he didn't really need the Botox. So we cancelled the appointment!!! YEAH! Doesn't Taylor just rock? Instead, we ended up traveling down to Waukesha to visit our NICU nurse Sue.

We had a really good time! Especially the kids. We stayed up late, and we ate, and we played, and well.. just so much catching up!


Then we slept, well the kids did anyway. Daddy drove, and Mommy struggled to stay awake. Daddy took Friday off, so we were all super spoiled having Daddy home Thursday through Tuesday! On Friday Jon and I fixed up the old bike trailer that our neighbor gave us when we moved in and bought the kids bike helmets... pix to come...
we went for a ride and the kids really thought it was fun... after they got going. Putting on helmets and getting in wasn't really fun.
Meanwhile, the girly nose kept running...
So after work on Saturday, Jon tells me that he gave Livi Albuterol because she started wheezing... no good... Sunday morning I pull out the old stethoscope, and sure enough this child's right lung was squeaky like a mouse! I called her dr and...

yup, nebs! Poor kiddo.
So on Monday, Memorial Day, we went over to James and Kristi's for a small cookout after playing outside all morning... and discovering a couple holes in our pool :( It was so fun to hang out and the kids had an awesome time! Thanks for having us over!!!
I can't say how nice it is to have other adults around once in a while leaving us free to relax a bit!
Tuesday morning we got up bright and early for SURGERY! Taylor was scheduled to have his adenoids removed, and his tubes replaced.

He really liked the Versed! After the procedure we met him in Recovery. Everything went well in the surgery, and he PASSED his hearing exam!

He was super sleepy, and really angry! Who wouldn't be though?
After an hour or so, he was still sleepy, AND only sating around 89 :(
Soooooo...

After four hours, he was still not sating very well... so a chest x-ray was done, and pnuemonia was diagnosed... we were admitted to the PACU for observation. By the time we arrived to the room, he was sating 96! The child was HUNGRY!!! So after a few hours of observation, we went home on... see pic above... the pink stuff... well his is actually white, but you get the idea. AND prednisone! sigh...
AND we were all exhuasted!

This morning I took Livi back to the Dr to check on things... guess what... you are going to be shocked... she has ...
PNEUMONIA too!
Shocking! I bet the Dr wishes the nurse had listened to me better last Sunday! So double strength Zithromax... here we come!
Take a moment to give us some health! We need it!
The kids are doing well, considering!